Public Contribution in Research, 7,5 hp

Description

Public contribution in research, also known as patient and public involvement, is defined as research being carried out “with” or “by” members of the public rather than “to”, “about” or “for” them. Well implemented public contribution in research can facilitate the conduct of relevant and accessible research, resulting in innovative and impactful solutions to healthcare challenges.
The overall goal of the course is to build a basic understanding of public contribution in health research. Further, the course will provide students with a simple toolkit to facilitate the application of the knowledge developed from the course in their own research.

Learning outcomes

After completing the course, the students should be able to:
• Explain what public contribution in research is, what it is not, and its empirical basis;
• Define and differentiate between different levels of public contribution in research;
• Apply existing frameworks and guidance for conducting public contribution in research and develop an understanding of ethical considerations;
• Practically apply public contribution in research activities throughout the research lifecycle;
• Identify and apply appropriate tools to facilitate public contribution in research;
• Identify barriers and facilitators for public contribution in research and reflect on how they may overcome barriers and utilize facilitators;
• Critically evaluate the impact of using public contribution in research in their research; and
• Identify and apply approaches to evaluate the impact of public contribution in research in their own research.

Contents

Seminar 1: Introduction: What is public contribution in research?
Seminar 2: Public contribution in research throughout the research cycle
Seminar 3: Tools to facilitate public contribution in research
Seminar 4: Barriers and facilitators in carrying out public contribution in research
Seminar 5: Evaluation of public contribution in research

Instructions

The course will adopt a “flipped classroom” approach. Therefore, more instructional and academic content will be delivered via online videos and reading material – and this will be done outside the classroom. A series of seminars will be used for activity-based learning, for example, class discussions, debates, peer reviewing, and skill development. The aim with this approach is that more interactional seminars will help to facilitate students’ ability to apply the knowledge gained during the course into their own research.

Seminars will be held onsite at Uppsala University. A hybrid solution may be offered if students are located outside of Uppsala.

Active participation in all seminars is required. Students are expected to prepare well before seminars and read three core articles before each seminar.
Attendance of all seminar sessions is mandatory. Since the collaborative learning is seen as important, only two seminars can be missed. Missed seminars will be replaced with writing tasks or alternative replacement task.

Examination

Active participation: Active participation at all occasions is required. Students are expected to prepare well before seminars and read three core articles before each seminar. Attendance is mandatory (or completion of replacement tasks for up to a maximum of two missed seminar sessions).
Poster session: Each student will individually create a Poster to present during seminar 3. Building on their own research students should think of ways of how utilize public contribution in research through the research life cycle and present it with a Poster. At the Poster session, each participant will present their Poster in five minutes followed by a five-minute discussion. The Poster session is an opportunity for students to present their ideas and gain feedback on how to apply public contribution in research to their project as a preparation for the final examination.
Examination paper: Each student will individually write a paper presenting a public contribution in research plan for a grant proposal related to their own research utilizing public contribution in research during the whole life cycle. The paper should also include a public contribution evaluation plan. Students will be provided a separate template for the paper according to what a funding application template could actually look like including headings and specified number of characters.
The paper will be around 6 pages (approximately 3-4000 words) + references. Students send the paper to each other for peer review. Each student will be main reviewer on one proposal.

Literature

Course literature detailed below is subject to change as will be updated, where appropriate, with more current resources prior to the course being run.
Seminar 1: Introduction: What is public contribution in research?
Hovén, E., Eriksson, L., Månsson D'Souza, Å., Sörensen, J., Hill, D., Viklund, C., Wettergren, L., & Lampic, C. (2020). What makes it work? Exploring experiences of patient research partners and researchers involved in a long-term co-creative research collaboration. Research Involvement and Engagement, 6, 33.
Stephens, R., & Staniszewska, S. (2017). Research Involvement and Engagement: reflections so far and future directions. Research Involvement and Engagement, 3, 24.
Staniszewska, S., Denegri, S., Matthews, R., & Minogue, V. (2018). Reviewing progress in public involvement in NIHR research: developing and implementing a new vision for the future. BMJ Open, 8, e017124.
de Wit, M., Abma, T., Koelewijn-van Loon, M., Collins, S., & Kirwan, J. (2013). Involving patient research partners has a significant impact on outcomes research: a responsive evaluation of the international OMERACT conferences. BMJ Open, 3, e002241.
Seminar 2: Public contribution in research throughout the research cycle
Garfield, S., Jheeta, S., Husson, F., Jacklin, A., Bischler, A., Norton, C., & Franklin, B.D. (2016). Lay involvement in the analysis of qualitative data in health services research: a descriptive study. Research Involvement and Engagement, 2, 29
Greenhalgh, T., Hinton, L., Finlay, T., Macfarlane, A., Fahy, N., Clyde, B., & Chant, A. (2019). Frameworks for supporting patient and public involvement in research: systematic review and co-design pilot. Health Expectations, 22(4), 785–801.
Manafò, E., Petermann, L., Vandall-Walker. V., & Mason-Lai, P. (2018). Patient and public engagement in priority setting: a systematic rapid review of the literature. PLoS One, 13, e0193579.
MacCarthy, J., Guerin, S., Wilson, A. G., & Dorris, E. R. (2019). Facilitating public and patient involvement in basic and preclinical health research. PloS One, 14(5), e0216600.
McMillan, B., Fox, S., Lyons, M., Bourke, S., Mistry, M., Ruddock, A., . . . Van Marwijk, H. (2018). Using patient and public involvement to improve the research design and funding application for a project aimed at fostering a more collaborative approach to the NHS health check: the CaVIAR project. Research Involvement and Engagement, 4, 18.
Seminar 3: Tools to facilitate public contribution in research
Devonport, T.J., Nicholls, W., Johnston, L.H., Gutteridge, R., & Watt, A. (2018). It's not just 'What' you do, it's also the 'Way' that you do it: patient and public involvement in the development of health research. International Journal for Quality in Health Care, 30, 152–156.
Jones, E., Frith, L., Gabbay, M., Tahir, N., Hossain, M., Goodall, M., Bristow, K., & Hassan, S. (2022). Remote working in public involvement: findings from a mixed methods study. Research Involvement and Engagement, 8, 58.
Supple, D., Roberts, A., Hudson, V., Masefield, S., Fitch, N., Rahmen, M., . . . Wagers, S; U-BIOPRED PIP group. (2015). From tokenism to meaningful engagement: best practices in patient involvement in an EU project. Research Involvement and Engagement, 1, 5.
Vat, L.E., Ryan, D., & Etchegary, H. (2017). Recruiting patients as partners in health research: a qualitative descriptive study. Research Involvement and Engagement, 3, 15.
Seminar 4: Barriers and facilitators in carrying out public contribution in research
Chambers, E., Gardiner, C., Thompson, J., & Seymour, J. (2019). Patient and carer involvement in palliative care research: an integrative qualitative evidence synthesis review. Palliative Medicine, 33, 969-984.
Goedhart, N. S., Pittens, C. A. C. M., Tončinić, S., Zuiderent-Jerak, T., Dedding, C., & Broerse, J. E. W. (2021). Engaging citizens living in vulnerable circumstances in research: a narrative review using a systematic search. Research Involvement & Engagement, 7(1), 59.
Gradinger, F, Britten, N., Wyatt, K., Froggatt, K., Gibson, A., Jacoby, A., . . . Popay, J. (2015). Values associated with public involvement in health and social care research: a narrative review. Health Expectations, 18, 661-675.
Keenan, J., Poland, D., Boote, J., Howe, A., Wythe, H., Varley, A., . . . Wellings, A. (2019). 'We're passengers sailing in the same ship, but we have our own berths to sleep in': Evaluating patient and public involvement within a regional research programme: an action research project informed by Normalisation Process Theory. PLoS One, 14, e0215953.
Seminar 5: Evaluation of public contribution in research
Collins, M., Long, R., Page, A., Popay, J., & Lobban, F. (2018). Using the Public Involvement Impact Assessment Framework to assess the impact of public involvement in a mental health research context: a reflective case study. Health Expectations, 21, 950-963.
Gibson, A., Welsman, J., & Britten, N. (2017) Evaluating patient and public involvement in health research: from theoretical model to practical workshop. Health Expectations, 20, 826-835.
Popay, J., & Collins, M. (2014). The Public Involvement Impact Assessment Framework Guidance. Universities of Lancaster, Liverpool and Exeter.
Shahid, A., Lalani, I. N., Rosgen, B. K., Sept, B. G., Longmore, S., Parsons Leigh, J., Stelfox, H. T., & Fiest, K. M. (2022). A scoping review of methods to measure and evaluate citizen engagement in health research. Research Involvement & Engagement, 8(1), 72.

Teaching staff

Joanne Woodford

More information

joanne.woodford@uu.se

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